Sara Story, NBC 5 Denton County Reporter
Kelsey Head has Vitiligo, she's teaching others about the rare skin disease while raising money to go to a conference to meet other kids living with Vitiligo.
A 7-year-old living with a rare skin disease is raising money to attend a conference in Florida to meet others with the same disease.
Kelsey Head said she has had vitiligo since she was 5 or 6 years old.
According to the U.S. National Library of Medicine, is a condition that causes a loss of pigment in areas of skin, which result in irregular white patches that feel like normal skin.
Vitiligo is not life-threatening or contagious; it makes Kelsey look a little bit different. She wrote a poem so her second-grade classmates would understand.
"My mom tells me that everybody has something that makes them different, but it's how you deal with it that make it significant," she said. "This vitiligo is mine, you see, and I am going to continue love being me."
Stacy Head, Kelsey's mother, said her daughter's case started as a small spot near her eye.
"I just thought it was a little white spot from being in the sun, from being outside," she said. "I didn't know it was going to travel over her whole body."
Kelsey is organizing a garage sale to raise money to help fund a trip to a vitiligo conference to meet other children and adults who are living with the same disease.
"I've been looking forward to seeing other people with it," she said.
Head said the trip would be one more thing to help her daughter realize that the inside, not the outside, is what matters.
The garage sale begins at 7 a.m. at 7012 Chaucer Drive in Denton.