genetic disorder

Fargo Family Fighting for Access to ‘World's Most Expensive Drug'

A Fargo family is one step closer in their fight for getting their baby girl a life-changing drug. Their 4-month-old daughter, Zoya was diagnosed with a genetic disorder just months ago. And the treatment that could save her life costs over $2 million. In fact, it's been coined as the most expensive drug in the world.

On April 25 Smriti Bista and Binod Bandey's lives changed forever.

"This was the most exciting thing we have ever done in our life," Fargo mother, Smriti Bista said.

Read more from NBC's affiliate in Fargo, North Dakota, KYLV.

Contact Us